The Struggle Bus is Real

I’ve been struggling lately as Mom’s caregiver. (Full disclosure, I’m not REALLY her caregiver. I see her weekdays only, usually less than an hour.) I’ve been impatient, frustrated, petulant…angry. She’s diminishing, before my very eyes. There seems to be less of her than before. But it’s not just her stature, it’s her mind. She used to be sharp as a tack. Now, she seems confused, which irritates me and also makes me feel bad. 

She can’t help it. Her body is failing her, much like her vision already did. 

You know how they talk about the circle of life? She’s heading back down the other way. As I’ve explained to people, she’s a version of 11 year-old me. I didn’t like 11 year-old me. I was self-absorbed and constantly wishing that I’d be diagnosed with something so that everyone would pay attention to me. VERY immature. Mom’s a nicer version of that. I’m finding it hard to be a mother to my mother. I’m not very good at it.

She complains of dizziness and lightheadedness. So I take her to the doctor. They poke, they prod, they question, they test. Then they say they can do no more and want to send her to the emergency room. Suddenly, she perks up and says: “Oh gosh, no. That seems like too much.” If I felt that it would be a worthwhile trip, I’d do it in a heartbeat. But I know we’ll spend hours with more testing and poking and prodding…to no avail. 

I don’t NOT believe her complaints. It’s just that I think that they’re vague and borne of boredom and isolation, two things she can solve but wishes not to. She gets overwhelmed by “plans.” So then the plans are canceled and she sits and thinks about how shitty she feels. It's a vicious circle.

I bring her audiobooks which she ignores…for weeks. I return the books and then, two days later, she says, as if I’ve long denied her: “There is something I’d like. Can you get me a book to listen to?” I quietly say “sure” and then hang up the phone and SCREAM at it. It’s a rage I haven’t felt in years…against my elderly mother. How cruel am I? Very, apparently.

What I should do is listen patiently to her and empathize. What I do instead is tell her that I’m concerned because if she can’t live without full-time help, we’ll have to move her to a nursing home. That scares her. I didn’t mean to do that, but honestly, it’s true. 

We get a letter saying that four falls is too many and she has to sign a contract saying that she’ll keep her walker by her side more often…which she already does. 

We’re in this precarious place. It’s not really living. It’s applying band-aids to the gushing wound of aging. 

I try to remind myself to be gentler, kinder…but I can never seem to get there. I have friends who would do anything to be with their mothers again, and here I am, complaining about mine. 

When I get to be 87, I’ll surely reap what I sow and then my regrets will be oh, so bitter.