Saturday, April 20, 2013

Seasons of Love - The Care and Keeping of Parents


"Five hundred twenty-five thousand six hundred minutes
How do you measure the life of a woman or a man?"
Seasons of Love from Rent

It seems unfathomable that it's been a year. So much has happened since that chilly April day in 2012 when I drove my parents to Wisconsin. They had lived their entire lives in Illinois – in Chicago and the northern suburbs. Rather suddenly, my siblings and I uprooted them and brought them to live with us, for a few months, and now in assisted living.

If you’re of “my generation,” i.e. a Baby Boomer, you may be part of the “Sandwich Generation.” We suddenly find ourselves with responsibility to our children and our parents at the same time. For many, it can be daunting. For me, it’s been eye-opening.

I had never spent much time with older people. Truth be told, I felt uncomfortable around them. I couldn’t relate, couldn’t communicate well. They looked funny and they smelled funny. What if something icky happened while I was around them? (No, I am not proud of these feelings. I’m just being honest. I was a wuss.)

I’m of the opinion that God knows your deep, dark unspoken secrets and finds ways to help you face them. Or, as a small plaque in my kitchen reads: “The Lord is the source of my needs and blessings.”

Because of health and safety, my parents’ move had to be quick and decisive. In retrospect, this was also a good thing for me. I had little to no time to process how my life was about to change. Although, I do vividly remember bursting into tears the night before the move and then having a personal cheerleading session where I told myself to “suck it up, Buttercup.” I was pretty comfortable in my “empty nest life.” I had no need or desire to shake that up. Oh, silly me.

My parents lived with us for three months. I wish I could say that I was a perfect daughter/hostess/roommate. I was not. I whined…a lot. Sometimes, it was frustrating. Pretty sure I lost my temper. I tried really hard, and failed often.

And while I was frustrated, I’m sure that my parents weren’t completely enamored of their “new life” and being semi-permanent houseguests. If there’s one thing I know about my parents, they HATED imposing on ANYONE. Take my feelings and multiply them ten-fold. That is, I’m sure, how my parents were feeling. And yet, they were far more graceful about it all than I was. They NEVER complained. Not once. Thinking back, I’m humbled.

Eventually, we found a nice assisted living apartment for my parents. All of us were cautiously optimist. My parents would be living in a new place, with new people, for the first time in many, many years. Remember starting high school or middle school? Remember cliques and lunch tables and schedules and all of the stress associated with that? Well, imagine doing that when you’re 80 years old. Daunting, right? All of it was a learning experience…for them AND for us.

That’s the thing about this past year: I’ve learned so much – about my parents, about myself, and about life. This is the “blessing” part of this journey. I’m honest enough to say that never in a million years would I have chosen this path. And yet, here I am on it.

When I talk to friends about their aging parents, I have to bite my tongue to not give unsolicited advice. Over a year ago, a friend of mine, who is a nurse, suggested that I consider going to medical appointments with my parents because it would be so helpful to them and me. It seemed ludicrous at the time, but stuck in my head. I started to do a little of it then and now I do a lot. I’m so grateful to that friend for planting that seed of wisdom. I want to pay it forward and share everything that I’ve learned with everyone. But I realize that not everyone has any interest. They’ll have their own journeys.

One of the many blessings along this journey are the small conversations that I have with my parents. The other day, I was driving home with my mom from one of her doctor appointments. I complimented her on how she is so gracious and accepting of her health limitations, especially, but not limited to, macular degeneration that leaves her with virtually no vision. She said: “Oh I don’t know. I guess you just have to accept where you are and learn to live with it.” For somebody who has been transplanted and moved around like a virtual gypsy for the past year, that seemed rather amazing.

And so the journey continues. New challenges crop up all the time. I’ve become my parents’ chauffeur, medical advocate, personal shopper and often their confidante. I am, literally, all up “in their business.” I know they wish it wasn’t that way, but I’m discovering that we all end up in situations in which we wish we weren’t. Grace is what helps us cope.

There is a quote at the end of the movie Life of Pi: “I suppose in the end, the whole of life becomes an act of letting go, but what always hurts the most is not taking a moment to say goodbye.” I couldn’t help but think these were wise words to guide me on the rest of this journey.


Thursday, April 4, 2013

Guilt Trip

It's been a long time - over three months. Not much has really happened and yet so much has changed. I've had so many thoughts mulling through my brain these past three months. Yesterday, I finally had to do an email "brain dump" to my siblings. I disguised it as an update, but there was nothing really new.

The gist of the update - Dad has checked out of life. Oh and I feel terrible about this.

No, seriously, he has checked out. He spends his days staring at the TV. He watches shows - NCIS, of course - that he's already seen again and again and again. Sometimes he even watches with the sound off. Perhaps he makes up his own dialogue in his head. I have no doubt it's better than the actual script of that show, but that's a whole 'nother blog.

I'm constantly bringing him books, in hopes to engage his mind. I want him to be interested in something...anything. But he's not. My hubby thinks he just doesn't want to read, but I won't give up.

He doesn't move and therefore his legs are getting weaker and weaker. He really struggles to get up. Mom is worried. The nursing staff at the facility is worried. I'm worried.

We're in a downward spiral and I feel SO guilty about that. I said as much to my siblings and they both responded with virtually the same sentence: "You are not alone in the guilt..." How can three pretty smart people feel guilty about something for which we have no control? We all know that it's up to Dad to improve his condition and yet we feel badly that his life has deteriorated to this point. Maybe because we felt like Dad was there for us when we were total idiots at points in our lives. We feel a strong sense of responsibility to fix his situation. And yet, we all know that it likely won't improve.

Yesterday, I took my parents to lunch. Mom was absolutely dying to get out of the facility. Can't say I blame her. Mom asked Dad to tell me about his "driver's license." He proceeded to tell me that he's going to appeal the revoking of his license. I then had an awkward conversation about how he's not really fit to drive and how a year ago, a whole team of neurologists tested him and deemed him unfit to drive. I also said that I didn't feel comfortable with him driving because of his general weakness. He told me that was unfounded.

And then I asked him if he had his license, where would he go? "Walgreens." That's it. Not the border or back home or anywhere but here. Just Walgreens. I understood. It's not about where, it's about independence. We've taken EVERYTHING away from him. (Yes, it's for his own safety, but still.) He wants control over something...ANYTHING.

In a perfect world, I'd give him a vehicle - a bumper car or maybe a golf cart or maybe Bubba Watson's hovercraft. He probably wouldn't go very far or very often, but he'd have the feeling of independence. He'd be in charge of something. But I can't do that. It's not safe for him or others.

It's funny how I've reached a stage in my life where what makes me happy is what makes "my people" happy - my hubby, my kids, my parents. And when they're unhappy, I feel the intense need to fix it all and the overwhelming and sad realization that that's not my job.

Sigh.